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Tag Archives: polycystic kidney disease

Heart, Mind & Body

20 Sunday Mar 2011

Posted by Young Wifey in Life

≈ 18 Comments

Tags

family, kidney, pkd, polycystic kidney disease, preemie, transplant

It’s been a long week and I’ve been a little too preoccupied with life, to post about it. My heart, mind and body seem to all be in completely different places at the moment. This past week was the clichéd emotional roller coaster. If you followed my Facebook page, then you know a little about what’s been going on in my world .

For starters, last weekend one of my close friends went into an early labor, extremely early. Things were scary for a few days and the doctors performed a C-Section. She is now the proud momma to an adorable tiny boy… 3 lbs 8 oz. A healthy boy, but tiny. Not prepared for him to come into the world yet, I had to meet him empty-handed, but full hearted. I’ve never made any baby things for a preemie yet, but I’m working on it (and hope to post soon). Mother and baby are both doing well. It’s wonderful how something scary can turn out so well.

Early Thursday morning, my mother got a phone call saying she was being offered a kidney for a transplant. I thought it was the best day of my life (it’s okay, Hubster even agreed that I could say it was better than our wedding day). We quickly made plans to head to my parents. My heart and mind were all over the place. Overjoyed for my family’s good news, yet my heart was heavy with grief for the donor’s family. I kept thinking about the (little) information I knew about the donor and her family, she was my age. All day Thursday we waited for the next call, telling us when to be at the hospital. Once the kidney was harvested, we found out that it was no longer viable. My mother actually ended up with a major infection and had to be admitted to the hospital. I wondering what if they had harvested the organs earlier, would my mom already have antibiotics through her system and wouldn’t have ended up with an infection? Or what if the kidney was still viable, but she got the infection, then would anyone else still have a chance to get that kidney?

An Orchid for Mom

An Orchid for Mom

With a hospital room filled with family, friends and flowers, my mother is doing better today, at least her spirits seem to be lifted. She’s still at the hospital, at least until Wednesday. We don’t know much about the infection yet. We just have to wait and see. After a few days at my parents, we headed back home to resume our lives as best we can now. My body is here, but I feel my mind and heart are somewhere else.

Despite the current trials in my life, I feel that my relationships, friendships and myself are stronger than ever. Hopefully I’ll have some positive news to post sometime soon. Until then, I’ll try to get back in the swing of posting recipes, crafts and other activities in my life.

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Polycystic Kidney Disease Awareness

10 Monday Jan 2011

Posted by Young Wifey in Blogging, Handmade Jewelry, Life

≈ 14 Comments

Tags

awareness, cause, charity, cure, health, kidney failure, pkd, polycystic kidney disease, postaday2011

This is a more serious post, compared to my usual blog posts.

Meet my Mom: She has been married to my father for 32 years! She enjoys hiking, kayaking, family, friends, and dancing. She started college at the age of 16 and backpacked across the country in the 60’s. She has been active member in her community for ever; Boy Scouts, Girl Scouts, church choir, PTO, and she started a drug & alcohol halfway house in her 20’s. She’s a terrific mother, friend and grandmother. She has inspired my interests in cooking, gardening, nature, wine, crafts, DIY, etc. Even though I look more like my dad’s mother, I have inherited her freckles, dazzling green eyes, honey colored hair, great eyebrows and dimple. She has PKD, it is genetic disease she was born with (my grandfather had it, my uncle is living with it too). She is on peritoneal dialysis and has been on a kidney transplant waiting list for a few years now. As a result of the PKD, she also has a polycystic liver. Unfortunately, she doesn’t yet have a kidney. The friends and family members who have been tested are not matches. She is one of my best friends and I can’t imagine my life without her in it! ❤ ❤ ❤

Me & My Mom

Me & My Mom

PKD (Polycystic kidney disease) is more common than down syndrome, cystic fibrosis, muscular dystrophy, sickle-cell anemia, hemophilia & Huntington’s disease… combined!!!

PKD is the most common, life threatening genetic disease affecting 600,000 americans and 12.5 million worldwide.

Did you know ET’s Cojo is living with it?

How can you help???

You can make a donation to the PKD Foundation.

Twining Vine Designs is selling a kidney heart pendant necklace for $32, $20 goes to PKD Research.

Check out the PKD Foundation’s idea page for fundraising!

Look for a walk near you and sign up to participate in 2011’s walk!

Zazzle has a bunch of PKD awareness T-shirts, posters, bags and more. I’m not sure how much of the cost goes to PKD research, check each item before you buy!

Even taking a minute to pass this information along would help raise awareness.

Thank you!!!

What is a cause that is close to your heart?

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